We’re all terminal, but some of us have accelerated time lines.
A few months ago I was diagnosed with late stage metastatic lung cancer. The prognosis, as you might imagine, is not good, and the timing is uncertain. Do I have six months? Three years? More? Less? No one can say.
Before the diagnosis I lived for months with intense pain, a wildly plummeting heart rate, a lost voice, and questions. Many questions. As of today, the pain and heart rate are under control, the voice is returning, albeit sporadically and in a diminished state, and the questions have dwindled. WHAT has been answered, and WHY no longer matters. I am left with the ever-wavering WHEN, which I refuse to dwell upon, and HOW, which has morphed into “how shall I spend my remaining hours”?
To that end, I choose to celebrate, to share those brief wonders and observations, the sights, feel, smells and sounds of tangible and intangible joys, the moments and experiences, no matter how small and seemingly insignificant, that weave through our days and add immeasurably to our lives.
I’ll post these brief notes here from time to time, as circumstances allow. I hope you might join me, lend your wisdom and insight, tell your stories, offer poems, share your moments, memories and precious time. Life is good! Let’s celebrate!
Oh, I am very sorry to read about this! I send what positive energy I can muster to you, and yours. I am sorry, Robert. I had been worried when I noticed your posts trailed off. You have important things to attend to. I wish, as a reader, and a person, there is more I could do.
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Thank you! I heartily accept all offers of positive energy. Take care.
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Bob. I’ve wondered where you’ve been, and now I know. I will celebrate the small moments with you and I include in that celebration knowing you over these years, and loving your poems (Driving with the Radio On comes to mind this very second). Much love from you fan and faraway friend.
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Then we’ll celebrate together, Alison. Thanks for your kind thoughts.
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As always, Bob, positive thoughts from us to you
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Thanks, Ken. It’s been a great week. I baked a cake for Stephanie’s birthday, which we celebrated with friends visiting from Texas. Much joy!
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I’m so sorry to read this news, Bob. Thinking of you and sending good thoughts your way.
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Thank you, Merril. Much appreciated.
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Good to see you and happy to celebrate each day with you
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Likewise, Beth. Let’s celebrate!
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Sorry to hear! I was wondering where your posts went.
I’ve been getting into alternative health modalities and many have healed themselves through processes of super dosing on digestive enzymes and systemic enzymes with vitamins and minerals and utilizing epsom salt enemas and coffee enemas to flush their livers and get the colon cleansed and off of processed foods of all kinds. Also healing frequencies and vibrations, such as being around beehives.
Regardless may God’s angels be released to bring your body what it needs to fully heal and allow you the means to write what needs to be written!!! Much love.
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I’m feeling pretty good today, thanks to the M.D. Anderson Cancer Center, and I hope to hang around for a while. 🙂
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I went there when I was first diagnosed. Really good place to go.
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We’re fortunate to have one here in Indianapolis!
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Much better than my trip from CA to Texas
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If I were still living in Austin, I’m sure that I’d be traveling to Houston for treatment. I’m really lucky to only have to drive across town.
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Very sorry to hear this news. My brother is also fighting a battle with cancer. I wish you the best and will be very happy to continuing sharing our creative spirits as we have through the years. Best regards, Phil
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We’ve been sharing for nearly ten years, Phil. Thank you. Let’s keep it up!
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Yes I know! I was thinking that also. Absolutely! Looking forward to future posts.
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I am very sorry to hear, Robert. So much of our worlds are fading. Your internal world seems, at least, alive………………….. Barry
Barry Dym, Ph.D.
Please note my new telephone number
781.538.5442
Cell: 617.899.6550
Blog: https://barrydym.wordpress.com/ https://barrydym.wordpress.com/ .
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Thanks very much, Barry. My vision may be blurry, but some visions remain clear!
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Dear Mr. Okaji,
I am so sorry to read of your illness. Your poetry is inspiring to me, as is your post about how you are choosing to focus your thoughts during this time. My hope and prayer is that you will be able to do exactly what you aim for, and to celebrate and share all of those things that make a life well-lived.
May the wonders and joys fill your days.
Kerri J. Roe
http://www.dreamsofshadowandlight.Wordpress.com
http://www.kerrijroe.com
Sent from my iPhone
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Thank you very much, Kerri. There’s much to celebrate in our daily lives, and I embrace the task. 🙂
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Much love to you, Robert. Hoping here that you will find in these days intense joys.
Ofc, all times always exist. It’s just that we can’t see the others from where we are, must as Tampa remains when I go to Boston, and Boston remains when I leave it for Tampa. All those other moments of your life, your birth, your death, all in betwen, all simply are.
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cx: much as Tampa remains
If I found out I had an hour to live, I would probably spend 40 minutes of it correcting typos in the note I wrote in the first 10.
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Attempting to view myself objectively, I find this sweet and naive.
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But also true!
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Ha! I know that feeling well!
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❤
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Make sense to me
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Thanks, Bob. The joys, even the tiniest ones, are more intense these days. Alas, some of the annoyances are, too, but I won’t dwell on them. 😀
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Yeah. I’m right behind you, btw.
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I’ve missed you, brother. Sorry to hear about the diagnosis. My wife died of a rare form of T-Cell lymphoma, but we managed to make the most of every day, which I know you will as well.
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That’s the goal, Wesley—to make the best of every single day. Otherwise, why bother?
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I’m very sorry to hear of your diagnosis, Bob. Thank you for letting us know. I’ll do my best to send good thoughts your way.
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Thanks, Liz. Quite frankly, the diagnosis was a relief. The months of not knowing, of not being able to get tested, much less receive a diagnosis, were horrible. But now at least issues are being addressed, and I feel good, happy (strange as that may sound) and at peace.
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You’re welcome, Bob. I can understand that.
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Oh wow Bob – it’s so good to hear from you but certainly not the best news! I’m glad your pa
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The light and love is much appreciated, Lynne. Thank you! Stephanie is a blessing, indeed. Her presence fills me with joy, and we share much laughter. Turns out we both enjoy dark humor, and now there’s a lot of fuel for that in our daily lives. Ha.
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Positive thoughts your way, Bob. You and your poetry bring a lot of joy and beauty to the rest of us, so keep sharing!
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Thanks, Gary. Michael V spent a weekend with us last month. Much poetry, much laughter!
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I hate to read this, Robert, but I’m also glad you shared it because I was wondering if you took a sabbatical because a lot of other writers have done so.
I offer my blessings of peace, happy moments to be had, and poetry. I hope you still have poetry in you. 🙏🏾💫
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Thanks, Tre. My days are filled with happy moments. The circumstances are less than ideal, but somehow those moments stand out.
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Robert, I’m so sorry to hear about your prognosis. Sending you good thoughts and crossing fingers that you’ll feel as well as possible for a long time to come. (I’ve been mostly absent from WP the last couple of years but still get email notifications. When I read the one with your post I just had to stop by.) Your poetry is the best and I hope you’ll be able to continue writing as often as possible.
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Thank you, Betty. All things considered, I’m feeling pretty good and optimistic. I intend to make the most of each day.
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Oh wow Bob – it’s so good to hear from you but certainly not the best news! I’m glad your pain is under control and i heartily agree with your attitude of celebration! Vibes like that are also good medicine! I’ll be rooting for you and please know i am showering you with light and love daily. My friend, i am so glad you have Stephanie by your side!
All the best🤞😘 and i look forward to hearing from you again – you are one of my favourite poets as well as people! (the rest of my reply above got cut off for some reason)
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Sorry to hear of your diagnosis. Having come recently from a stroke and then triple negative breast cancer, I still can’t know what you are going through, snd virtual hugs just don’t sound like they cut it. I hope you continue writing and hope even more that somehow you beat this. Please hug your loved ones and keep going.
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Oh, Barbara. I’m so sorry to hear about your medical issues. Getting old is not for the faint of heart! Thank you for the encouragement.
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Sending hugs
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Returning them, with gusto!
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Bob, Chance led me to look at my reader today as I’ve been offline for a month, and not sure when I’ll be back. The poetry currents are evidently strong.
This is, of course, not good news. But to celebrate life is always a good choice I think. Sending all my best thoughts, Kerfe
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Ah, Kerfe. Poetry works in mysterious ways! So glad you stopped by. I am glad to still be able to celebrate. What more can we do?
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Right behind you. The real art is in our hands.
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Let’s keep it going, John. Thank you.
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Bob,
I’m so sorry to hear this, but I’m glad you’re focusing on the things you can celebrate.
Nevertheless, goddammit and fuck cancer. I know there’s a tradition of the best poets being taken too soon, but being to exception to the rule, well, we’d all appreciate that.
You and Stephanie are in my thoughts.
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Thank you, Charles. Yes, fuck cancer! But right now I’m feeling good, and Stephanie and I, while being realistic about the future, are also determined to enjoy our lives to the fullest. What more can we do?
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I’m glad for that. And really, that’s something we should all do.
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Oh, hell, Robert. I’m sorry. The poems you’ve posted have meant a lot to me, and I’ve shared a good number of them with friends or on Twitter.
On celebrating at this time: Beauty has never been as sharp-edged and clear as when I’ve been (or thought I’ve been) close to death, either my own or that of someone I love. May you find moments of beauty in whatever time you have.
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Thank you, Ellen. I am surrounded by beauty and joy. There’s other stuff, too, but I’ll let others focus on the negative. After surviving a “widow maker” heart attack nearly ten years ago, I’ve felt almost as if I’ve been living “bonus” years, and the reality of my mortality is no longer as daunting as it once was. Life is good. I truly believe that.
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The mention of bonus years reminds me of Raymond Carver’s “Gravy.” https://www.newyorker.com/magazine/1988/08/29/gravy Very different than your work, but powerful nonetheless.
My thoughts go with you, and my gratitude for your poetry.
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Yes! My feelings exactly. Thanks for sharing. Carver is such an under-appreciated poet.
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Beautifully written
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Such a shock, Bob. I admire your approach
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Thanks, Derrick. The diagnosis, after months and months of not knowing, was actually a relief, and I don’t think I can approach the future in any other way. I have too much to be grateful for, too many reasons to celebrate.
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Fully understood
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I’d also wondered why your posts had tailed off, Robert. So sorry to hear this, but also sending strength and positive thoughts.
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Thank you, Mick. I welcome all positive thoughts!
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You bring such beauty into the world, Robert, even now, even in relaying this news. You are a teacher and an artist and it is a pleasure to learn from you. I am so sorry to read this news from you, but will honour you by seeing and celebrating. Thank you.
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Thanks very much, Susan. I am honored that you will celebrate with me.
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I love this and am sending you love and insights of daily bliss in all you do. I’m also sorry you have to deal with this.
💞
“I am left with the ever-wavering WHEN, which I refuse to dwell upon, and HOW, which has morphed into “how shall I spend my remaining hours”?
To that end, I choose to celebrate, to share those brief wonders and observations, the sights, feel, smells and sounds of tangible and intangible joys, the moments and experiences, no matter how small and seemingly insignificant, that weave through our days and add immeasurably to our lives.”
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Thank you, Cindy. Much appreciated.
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Glad you feel up to posting a bit. For what it’s worth you’re in my prayers every day since we corresponded. Every day is precious, especially those where we have a bit more enegy.
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Thanks, Angela. I’m feeling good, much better than I felt before treatment began. I don’t take this for granted, as every day, as you said, is precious, indeed.
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Much love to you my friend 🖤🖤🖤
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Thank you (and back at you)!
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🖤🖤
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I’ve missed your poetry! I am so sorry to hear that you have had this health challenge, but the courage to live in joy is a powerful healer. May you be well!
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Thanks very much, Barbara. It’s good to be back.
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Thank you, Barbara. It is a good day, one with much joy. And there will be others!
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Love is the strongest chemo! ♥️♥️♥️♥️
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I too had noted the gap in posting, but knowing how life interrupts art I was hesitant to ask. Even when I thought today I should ask, then life interrupted me. And now today I read the reason. Life interrupts us, but profoundly, it has a final interruption.
Like others here, I’m sad about the news but admire your attitude toward it. I wish you and yours the best in coping with this. I’ve admired what you’ve done here over the years, and I was so happy to see you read online during the pandemic. Your work with “after” poems reflecting on the Tang poets so reinforced and amplified my attempts there. Thank you.
Every day, for all of us, is a single day. Thoughts of you will remind me of this.
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Thank you, Frank. The past year has been a wild ride, but now I’m settling in to this new way of being. I feel good today, strong. In a few hours I’ll undergo a scan which will give us some idea of how well the treatment is working. And it is working, at least for the time being. The difference between how I felt three months ago and today is incredible. There is no cure for this, but I’ll gladly accept whatever additional time I’m given. Life is good!
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Hi Bob,
I was wondering about your silence. So sorry to hear about your diagnosis, that is very sad news.
When I first started blogging your blog was (and still is) to me the gold standard. I was always amazed at how you kept up such a high quality. And thank you for some very gracious comments on my work early on.
So hang in there, Bob, and yes, enjoy your days!
All the best
Jim
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Thanks, Jim. I’m pleased to still be here, and hope to participate more fully in the days to come. I am enjoying my days to the fullest!
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Bob, Oh how I weep for you and wish you werent suffering so. It pains me that you are ailing and yes, please let us accompany you through every precious gift of the present. Your life has been one of sharing beauty and we’d like to thank you by offering you much deserved support. Keep us posted of your treatments. Silence will worry us, so all you can post is appreciated. May your every day be one of distractions that make you smile and take your mind off of the when. ~ much love ~
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Thank you, Steph. The “when” doesn’t overly concern me, except with regards to practical matters like “should I renew the subscription to this print journal.” 😄 And I actually just renewed one (but only for a year). Ha!
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Traveling with limited access – when home again will post poem that fits your focus-on-moment’s joy suggestion – has to do with grasshoppers of all oddities. Thinking about you! Jazz
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I look forward to reading it, Jazz! By the way, we had pizza with out-of-town visitors last week, and this time I was able to eat it. A victory if ever there was!
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Thank you for all your offerings on the edge. Sending you all the joy and positive energies for the new journey you have to face. You have the strength to celebrate life and hope all will be peaceful in the moments to come.
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Thank you for the joy and positive energies! I feel good today, am happy and at peace. Life is good!
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Wishing you many more days of happiness.
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They’re coming!
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This life is good. What lies beyond may be even better. For me, this one will lose a bit of its luster without new poems from you. Thanks you for those already written.
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Thank you for your kind words. I think there are still a few poems to come. 😀
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I’ve channeled all my life and usually the crossing is reported to be a wonderful series of surprising experiences. It’s a little different for everyone, of course, but many times one is already feeling more loved even before fully departing the body.
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Dear dear Robert, I am so sad to hear your dreadful news. I admire your courage and your decision “to celebrate, to share those brief wonders and observations, the sights, feel, smells and sounds of tangible and intangible joys, the moments and experiences, no matter how small and seemingly insignificant, that weave through our days and add immeasurably to our lives.” I will be here beside you learning & sharing with you. I am sending you all love. Maggie
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Thank you, Maggie. I’m feeling good today, with more good days to come. I’ll certainly cherish them, along with all the good thoughts, vibes, virtual hugs and love sent my way!
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I am so sorry to hear this Robert. I was wondering why your poetry was no longer arriving in my inbox. I admire your ability to celebrate the time you have left. As you say, we are all terminal, and we all don’t know how much time we have left, and often forget to attend to the moment. I’m glad you will be attending to the moment, and am sending good vibes from the west coast, hoping that you can enjoy each day as it comes. Best wishes.
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Thank you, Jilanne! I celebrate daily, and hope to post several times a week for the foreseeable future. Today is good. Tomorrow might be even better!
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Robert your news is heartbreaking and your attitude and approach heart-lifting. Your poetry has always reflected a man who is awake and aware of being alive. And that apparently hasn’t changed. Of course not! I wonder if you have any idea how deep and important your influence is and continues to be to so many of us. I wish you the very best in the days to come and send you an abundance of whatever it is one can send that provides a bit of glow along the way.
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Thanks so much for your kind words, Chris. Keep writing your poems, and the glow will find its way to me.
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I second that
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I have enjoyed your work, if that is any consolation.
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That means everything to me. Thank you!
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I have been wondering about you. Yes, life is a series of small and great joys. Life is a celebration of being.
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Thanks, Jay. It’s good to hear from you. Keep sharing your joys!
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I was so happy to see your byline again in my email, but the so sad to read your news. Peace and healing to you, and joy – much, much joy.
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Thank you, Jennifer. I’ll keep sharing the joy for as long as I can.
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Robert, I’ve just arrived to revamp my WP acct and I’m stunned by this news. “You Say Cicada” was the first piece I ever accepted for C&B and it still and always will floor me. Your poems are deeply memorable, filled with grace and beauty and wisdom, and although my heart is breaking right now I’m so grateful you chose to share your words with so many of us.
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Thank you so much, C.B. I’d almost forgotten about the poem, but now I think it should go into a manuscript (which doesn’t exist yet). Seems the work never ends. 😄 I am feeling good today, which is yet another thing to celebrate!
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Poetry and celebration: the universe’s way of keeping us on our toes! 🎉💃
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Oh, yes. I owe much to poetry. I pulled up my roots , and moved a thousand miles away from the life I’d carved out for 30+ years, because of poetry! Powerful stuff, that poetry!
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I’m so sad reading this, Robert. I’m glad you’re getting medical care at MD Anderson. Thank you for letting us know what’s going on. I’m sorry.
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Thank you, Dana. Knowing what I am facing is so much better than not knowing. It has a name now!
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Yes, it has a name. I’m glad you know what’s going on. I’m thinking of you.
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It was good to name it, particularly since the disparate symptoms (of hip, heart and vocal cords) led us all astray.
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Pingback: Lightly, from Aldus Huxley’s novel “Island” | Frank Hudson
While thinking of you and your announcement this week I came upon a piece of text from Aldous Huxley’s last novel and thought of you as I worked on presenting it. Just got done posting it tonight at the Parlando Project.
You continue in my thoughts.
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Thank you, Frank. Lightly, my friend. Lightly…
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I was/am deeply heavy in my heart to read this post, Robert.
That aside – I’m sending you and your bride love and light every day. If I could do more I would.
Thank you for sharing your life and this living.
Celebrate each moment.
Cheers!
~Jessan
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Thank you, Jessan. Your light and love are much appreciated, as are your words.
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Oh Robert, I’m very sorry to hear your heavy news. I have been worrying about your absence for a while now, hoping it was just a busy life interfering with your blogging
.
Your poetry sustains and inspires me, and living life to intensity is what I would expect of you at this time. I can feel that intensity in much of your work.
My love and respect to you and your wife.
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Thank you, Kim. I am feeling good, awaiting the morning’s first birds, and about to have my first cup of coffee. Can’t ask for much more than that. Well, an almond croissant would be nice, too… 😀
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😊
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I’m very sorry to hear this news, but grateful that you are sharing it with us so that we may become a “virtual support” to you, Robert! ❤ You are so right to celebrate; such a good mindset as you navigate this new reality. ((hugs))
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Thank you, Susi. This new reality has been interesting, to say the least, with more to come.
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You’re welcome!
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Welcome back, Bob. I’m glad to see your post again after a while, despite the unexpected news. Fuck cancer! I wish you the fortitude and vitality to carry on with life. 🤗🦋
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It’s good to be back, AJ. I’ll do my best to carry on.
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